In the world
Associations, the news and efforts carried out to support the children reached
1-News from the world
أمل جديد للأطفال المصابين "بكزوردرما"
New hope for the children reached with Xeroderma Pigmentosum
Our comments (Dr Zghal Mohamed)
The risk of use of the heterogenic graft is the induction of cancers under the effect of the immuno suppressor on a genetically predisposed ground. We will have to wait a few years to compare the profit in survival compared to the carcinogenic risks of drugs used.
2-Associations
EURORDIS est une fédération d’associations de malades et d’individus actifs dans le domaine des maladies rares
3- Disease management
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The objective of this national protocol of diagnosis and care (PNDS) is to clarify for the professionals of health, the catch in optimum load impedance and the course of care of a patient admitted in ALD with the title of the ALD 31: xeroderma pigmentosum (XP).
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4-Links
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